Just Breathe

Finally, an official diagnosis. It’s not terrible, it’s manageable. But it’s a disease for life – which means she’ll have to maintain a serious diet…forever. That’s depressing – but people with serious food allergies deal with this all the time. I am thankful it’s not worse.

Basically my 8-year-old has been diagnosed with Celiac’s disease. She is at stage 3 (there are only 4) and there is damage to her stomach lining. As it happens, I have at least 3 neighbor’s who have children also with Celiac’s disease so I’ll be going to them for recipes and support I imagine. The silver lining is the doctor said after a few months of adhering to the strict diet the damage to her stomach lining is reversible. She’ll start to grow and not be teased that she is a baby anymore because of her size (I hear growth is almost immediate after a proper diet is established).  We all need to be tested as well, I fear another daughter will also be diagnosed as she is quite smaller than her peers – but at least they’ll do it together.

https://i1.wp.com/assets4.designsponge.com/wp-content/uploads/2009/07/rosie_the_riveter1.jpgThat was yesterday.

Today, after meeting with the psychologist from school, we have a final assessment that our 8-year-old is quite intelligent and has tons of motivation but she lacks in language skills, in both languages so she suffers tremendously in school. We are trying to get her into a new class, a smaller class so that she won’t get as lost or feel frustrated that she can’t keep up. The problem may be that even if she qualifies to be in the class, it may not be held at her current school, where she has her sisters to rely on when things are too much for her to handle. We’ll have to wait and see, if there are enough students in her current school to warrant a special class, then she wins. If the majority of students are from another neighborhood then she’ll need to switch schools to where the majority go. That makes me nervous. She’ll need speech therapy. She’ll need to read more books and play more language based games, we’ll try to make it as fun as possible, which means lots of extra TLC – lucky girl.

Lastly, she has a hearing problem. Well, well, well. No wonder she is not thriving in school! She has a belly ache half the time, she can’t hear what’s going on and when she can hear she doesn’t always understand.  My poor girl.

We will be vigilant. We will see the speech therapist, the ENT, the dietician. I will enter the health food store, regardless of its funky barn-like stench, I will learn biology and what this really means so that I can offer her the best information and choices for her to flourish and blossom.

https://cheriblevy.files.wordpress.com/2013/05/be3f6-apple.jpgAnother day, another hurdle. To add to this emotional roller coaster I started eating better myself. Tired of the roly-poly me, even though she is so jolly, Chubby is watching her weight and even exercising, alert the media! Just kidding, please don’t = even though I love watching The Biggest Lose (Australia) – I wouldn’t want to be a contestant. So even though I still have not surpassed that major desire to wolf down a sugar packet, I am making smarter choices and taking smaller portions, but I am still kind of cranky.  I want to love healthy food…but I don’t. Not yet anyways. I know it will come, I know I need to keep the pantry stocked with better choices and the fruit and veg bin full at all times – this will help me from grabbing something I shouldn’t eat. Now that I’ll be consciously watching my daughter’s diet, I think this will help me overall as well. Fingers crossed people. The longest I ever stuck with any diet was a week.

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One comment

  1. Aye my sweet baby girl! Keep your head up! Im so glad you now know whats going on so you can start the solution. Love from the states! Wish we were there with you

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